Update on Callie

We saw the neurologist yesterday regarding Callie's seizure.

We didn't really get the news we wanted to, but it's not all bad.

Basically, Callie is probably going to have more seizures - conditions are there for them to happen again. The lesion on her brain isn't going away.

We can treat with medicine if we want. The doctor said they don't typically give medicine after only 1 seizure, but since her condition is slightly different, we might want to consider it - just to prevent any future problems. It also might help with her behavior. It is possible that the lesion is causing the sporadic and very bad behavior.

Callie often "wakes up" at night screaming. You can't console her when this is happening. She won't let you touch her or talk to her. It usually takes about 10 minutes before she's "reasonable" again. I personally don't think she's aware of what is going on during this time. The dr said this could very well be an electrical problem in her brain that is causing this (not quite a seizure, but behavior caused by the lesion).

He gave us Diazepam to keep with us at all times in case another seizure happens. If it lasts more than 3 minutes, then we have to give this to her (it's a suppository). Hopefully, we'll never have to use it.

We will go back for a follow up visit with him in about 3-4 months.

Until then, we'll monitor her behavior and see if anything changes, document her mood each morning to see if there's any pattern to her moodiness/behavior, etc.

She will have to have an MRI about once a year to make sure the lesion is not changing.

So, right now, we're just in a wait and see mode.