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Butler Family: May 2008

Butler Family

Wednesday, May 28, 2008

Memorial Day Weekend

The weekend started nice...we took the kids to the zoo and they had a blast. While we were there, my mom called to say my aunt had passed away. She had lung cancer and had only found out 3 weeks before. She didn't want to call the family and worry them.

Mom & I went to the funeral in Fredericksburg, VA. We stopped in WVa and picked up my other aunt, so the 3 of us could ride together.

The service was nice...they did a military service at the graveside since she had been in the Navy (flag and taps).

We got home late Tuesday afternoon.

I think Emma missed me the most. :) That night, she didn't want me to leave the room when it was time for bed. I held her for awhile and then put her down. I had to go back upstairs later because she was crying. I rubbed her head and she said, "Can I just sit in your lap?". I held her for awhile longer and then she went to sleep. The next morning, she came running into our bedroom yelling, "There's mommy! There's mommy!!".

I got big hugs from the other 2, but they were okay. As a matter of fact, Josh went over to Mom & Dad's last night to stay for a night or 2. They were going to plant flowers, but it's been a little rainy today.

Wendy's coming in tomorrow for Josh's birthday. It so happens that it's Scott's birthday, too. Josh's birthday isn't for another couple of weeks, but she can't come in then. I think we're going to try to get together Friday night and have a cookout. I just hope Scott can get off of work in time to join us - since it IS his birthday! :)

Thursday, May 15, 2008

Update on Callie

We saw the neurologist yesterday regarding Callie's seizure.

We didn't really get the news we wanted to, but it's not all bad.

Basically, Callie is probably going to have more seizures - conditions are there for them to happen again. The lesion on her brain isn't going away.

We can treat with medicine if we want. The doctor said they don't typically give medicine after only 1 seizure, but since her condition is slightly different, we might want to consider it - just to prevent any future problems. It also might help with her behavior. It is possible that the lesion is causing the sporadic and very bad behavior.

Callie often "wakes up" at night screaming. You can't console her when this is happening. She won't let you touch her or talk to her. It usually takes about 10 minutes before she's "reasonable" again. I personally don't think she's aware of what is going on during this time. The dr said this could very well be an electrical problem in her brain that is causing this (not quite a seizure, but behavior caused by the lesion).

He gave us Diazepam to keep with us at all times in case another seizure happens. If it lasts more than 3 minutes, then we have to give this to her (it's a suppository). Hopefully, we'll never have to use it.

We will go back for a follow up visit with him in about 3-4 months.

Until then, we'll monitor her behavior and see if anything changes, document her mood each morning to see if there's any pattern to her moodiness/behavior, etc.

She will have to have an MRI about once a year to make sure the lesion is not changing.

So, right now, we're just in a wait and see mode.

Thursday, May 08, 2008

More Updates

I'm not doing a very good job at keeping up with this!

Emma just got over a viral thing (throat) - ran high fever for a couple of days, no appetite, etc. She finally got over that and is feeling good!!

On Monday, Callie started running a high fever and complaining that her tummy hurt. Well, Monday night, I couldn't get her fever down so we called the doctor. They said to take her into the ER since she was still complaining about her tummy hurting (possibly her appendix?).

Anyway, I took her in at 11:00 Monday night. They did a throat culture, negative for strep. They did a urine test - negative...not sure about her tummy, but nothing serious. So, to make a long story short, she had the same thing Emma did. We didn't get home until 4:00 in the morning and neither of us napped during that time.

Callie went to daycare today...she's feeling better! I just hope she makes it all day. She was sad when she found out she missed Gym Bus. :(

Josh had field day at school yesterday. He had a great time! He came home w/ lots of ribbons. We went and watched him in the morning. He loved having us there! :)

School will be out in the next few weeks. We're trying to figure out what to do with Josh this summer. Daycare has really gone up in price and we're just not going to pay that much. Luckily, they're working with us and we can pay when he's there.

He has scout camp in June. He's also going to go to Art Camp and a Day camp at a local church. I think we're going to wear him out, but I hope he has fun! :)